Actionable Patient Safety Solutions (APSS)

20B Critical Congenital Heart Disease (CCHD) in Newborns

The Critical Congenital Heart Disease (CCHD) in Newborns APSS Blueprint outlines actionable steps healthcare organizations should take to successfully implement and sustain improvements in order to detect CCHD in newborns. Actionable steps to improve CCHD detection rates and summaries of available evidence-based practice protocols are included:

  • Leadership checklist guide to determine whether current evidence-based guidelines are being followed in your organization
  • Performance improvement plan to follow if improvements are necessary
  • Clinical workflow for CCHD screening
  • Knowledge base on early detection and treatment of CCHD
  • How to educate patients and family members about CCHD recognition and implications
  • CCHD resource guide
  • Guidance on how to measure outcomes

The Blueprint is revised annually and is available free of charge on our website.

Hospitals who make a formal commitment to improve CCHD detection and share their successes on the PSMF website have access to an additional level of consulting services.

Executive Summary

The Problem Each year, an estimated 2,000 infants die or are undiagnosed with Critical Congenital Heart Disease (CCHD) in the U.S. and some 300,000 infants die or are undiagnosed with CCHD globally (Salvi, 2016). More than 30% of CCHD deaths have been attributed to late or missed diagnosis (Chang, Gurvitz, and

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